{"id":2148,"date":"2024-07-12T12:52:57","date_gmt":"2024-07-12T11:52:57","guid":{"rendered":"https:\/\/boks.be\/notre-association\/"},"modified":"2025-04-18T10:38:01","modified_gmt":"2025-04-18T09:38:01","slug":"notre-association","status":"publish","type":"page","link":"https:\/\/boks.be\/fr\/notre-association\/","title":{"rendered":"Notre association"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"2148\" class=\"elementor elementor-2148 elementor-801\" data-elementor-post-type=\"page\">\n\t\t\t\t<section class=\"elementor-element elementor-element-1e8812e e-flex e-con-boxed e-con e-parent\" data-id=\"1e8812e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-bf77ff4 e-con-full e-flex e-con e-child\" data-id=\"bf77ff4\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-55b0cbe shape-left-circle elementor-widget elementor-widget-image\" data-id=\"55b0cbe\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"1280\" height=\"1280\" src=\"https:\/\/boks.be\/wp-content\/uploads\/4cb44c2c64b844d11f7eed3342cf614f-e1720702288955.jpg\" class=\"attachment-full size-full wp-image-1725\" alt=\"\" srcset=\"https:\/\/boks.be\/wp-content\/uploads\/4cb44c2c64b844d11f7eed3342cf614f-e1720702288955.jpg 1280w, https:\/\/boks.be\/wp-content\/uploads\/4cb44c2c64b844d11f7eed3342cf614f-e1720702288955-300x300.jpg 300w, https:\/\/boks.be\/wp-content\/uploads\/4cb44c2c64b844d11f7eed3342cf614f-e1720702288955-1024x1024.jpg 1024w, https:\/\/boks.be\/wp-content\/uploads\/4cb44c2c64b844d11f7eed3342cf614f-e1720702288955-150x150.jpg 150w, https:\/\/boks.be\/wp-content\/uploads\/4cb44c2c64b844d11f7eed3342cf614f-e1720702288955-768x768.jpg 768w\" sizes=\"(max-width: 1280px) 100vw, 1280px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-dc64466 elementor-widget__width-auto round btn-l elementor-absolute elementor-widget elementor-widget-button\" data-id=\"dc64466\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_position&quot;:&quot;absolute&quot;}\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/boks.be\/fr\/devenez-benevole\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-long-arrow-alt-right\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M313.941 216H12c-6.627 0-12 5.373-12 12v56c0 6.627 5.373 12 12 12h301.941v46.059c0 21.382 25.851 32.09 40.971 16.971l86.059-86.059c9.373-9.373 9.373-24.569 0-33.941l-86.059-86.059c-15.119-15.119-40.971-4.411-40.971 16.971V216z\"><\/path><\/svg>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Devenir b\u00e9n\u00e9vole<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c382a69 elementor-widget__width-auto round btn-l elementor-absolute elementor-widget elementor-widget-button\" data-id=\"c382a69\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_position&quot;:&quot;absolute&quot;}\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-size-sm\" role=\"button\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-long-arrow-alt-right\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M313.941 216H12c-6.627 0-12 5.373-12 12v56c0 6.627 5.373 12 12 12h301.941v46.059c0 21.382 25.851 32.09 40.971 16.971l86.059-86.059c9.373-9.373 9.373-24.569 0-33.941l-86.059-86.059c-15.119-15.119-40.971-4.411-40.971 16.971V216z\"><\/path><\/svg>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Collecte de fonds<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-9dd31d0 e-con-full e-flex e-con e-child\" data-id=\"9dd31d0\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-d7924d1 elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"d7924d1\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Tout sur notre organisation<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-951c97b elementor-widget elementor-widget-heading\" data-id=\"951c97b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">BOKS asbl = Organisation belge pour les enfants et les adultes atteints d'une maladie m\u00e9tabolique association sans but lucratif<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a64b61c elementor-widget elementor-widget-text-editor\" data-id=\"a64b61c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>L&rsquo;association \u00e0 but non lucratif BOKS est une organisation fa\u00eeti\u00e8re pour toutes les maladies m\u00e9taboliques qui sont individuellement trop rares pour recevoir le soutien et l&rsquo;int\u00e9r\u00eat du grand public. L&rsquo;association \u00e0 but non lucratif BOKS a pour objectif de fournir des informations et une assistance pour am\u00e9liorer la qualit\u00e9 de vie des personnes atteintes d&rsquo;une maladie m\u00e9tabolique. <\/p><p>L&rsquo;association a \u00e9t\u00e9 fond\u00e9e en 1994 par un couple de parents courageux. En 1987, on leur a annonc\u00e9 que leurs deux fils souffraient d\u2019une maladie m\u00e9tabolique potentiellement mortelle. Ils se sont fray\u00e9 un chemin \u00e0 travers le labyrinthe des demandes de m\u00e9dicaments, d&rsquo;aliments sp\u00e9ciaux, etc. Les parents ont pris contact avec d&rsquo;autres parents et ont d\u00e9cid\u00e9 de cr\u00e9er l&rsquo;association \u00e0 but non lucratif BOKS pour s&rsquo;informer et se soutenir mutuellement.   <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f6f2f24 elementor-widget__width-auto elementor-widget elementor-widget-button\" data-id=\"f6f2f24\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/boks.be\/fr\/contact\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Contactez-nous<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/section>\n\t\t<section class=\"elementor-element elementor-element-e419623 e-flex e-con-boxed e-con e-parent\" data-id=\"e419623\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-e5bb0a5 e-con-full e-flex e-con e-child\" data-id=\"e5bb0a5\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t<div class=\"elementor-element elementor-element-eb5381d e-con-full e-flex e-con e-child\" data-id=\"eb5381d\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ce75d81 elementor-widget elementor-widget-heading\" data-id=\"ce75d81\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">4 piliers<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-bba7d31 elementor-widget elementor-widget-text-editor\" data-id=\"bba7d31\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Le fonctionnement de l&rsquo;association \u00e0 but non lucratif BOKS repose sur 4 piliers<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-bfdf0ed e-con-full e-flex e-con e-child\" data-id=\"bfdf0ed\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-f3aa7e7 elementor-position-inline-start elementor-view-default elementor-mobile-position-block-start elementor-widget elementor-widget-icon-box\" data-id=\"f3aa7e7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-box-wrapper\">\n\n\t\t\t\t\t\t<div class=\"elementor-icon-box-icon\">\n\t\t\t\t<span  class=\"elementor-icon\">\n\t\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" id=\"Laag_1\" viewBox=\"0 0 60 60\"><defs><style>      .st0 {        fill: none; 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Plaidoyer\t\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/h3>\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2c88323 elementor-widget elementor-widget-text-editor\" data-id=\"2c88323\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>L&rsquo;association \u00e0 but non lucratif BOKS vise \u00e0 apaiser les inqui\u00e9tudes des patients et de leurs familles. Cela fait une grande diff\u00e9rence pour eux. Nous assistons \u00e0 des conf\u00e9rences, pr\u00e9parons des dossiers et participons \u00e0 des d\u00e9bats.  <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2d484cb elementor-widget elementor-widget-text-editor\" data-id=\"2d484cb\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>L&rsquo;association \u00e0 but non lucratif BOKS s&rsquo;engage \u00e0:<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f3d94b1 elementor-align-start elementor-icon-list--layout-traditional elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list\" data-id=\"f3d94b1\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-list.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul class=\"elementor-icon-list-items\">\n\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-check\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M173.898 439.404l-166.4-166.4c-9.997-9.997-9.997-26.206 0-36.204l36.203-36.204c9.997-9.998 26.207-9.998 36.204 0L192 312.69 432.095 72.596c9.997-9.997 26.207-9.997 36.204 0l36.203 36.204c9.997 9.997 9.997 26.206 0 36.204l-294.4 294.401c-9.998 9.997-26.207 9.997-36.204-.001z\"><\/path><\/svg>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Simplifier la l\u00e9gislation et l\u2019administration.<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-check\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M173.898 439.404l-166.4-166.4c-9.997-9.997-9.997-26.206 0-36.204l36.203-36.204c9.997-9.998 26.207-9.998 36.204 0L192 312.69 432.095 72.596c9.997-9.997 26.207-9.997 36.204 0l36.203 36.204c9.997 9.997 9.997 26.206 0 36.204l-294.4 294.401c-9.998 9.997-26.207 9.997-36.204-.001z\"><\/path><\/svg>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Rendre remboursables les m\u00e9dicaments souvent vitaux, mais g\u00e9n\u00e9ralement co\u00fbteux.<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-check\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M173.898 439.404l-166.4-166.4c-9.997-9.997-9.997-26.206 0-36.204l36.203-36.204c9.997-9.998 26.207-9.998 36.204 0L192 312.69 432.095 72.596c9.997-9.997 26.207-9.997 36.204 0l36.203 36.204c9.997 9.997 9.997 26.206 0 36.204l-294.4 294.401c-9.998 9.997-26.207 9.997-36.204-.001z\"><\/path><\/svg>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Encourager la recherche sur le diagnostic et le traitement. Ceci en collaboration avec des organisations europ\u00e9ennes. <\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-check\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M173.898 439.404l-166.4-166.4c-9.997-9.997-9.997-26.206 0-36.204l36.203-36.204c9.997-9.998 26.207-9.998 36.204 0L192 312.69 432.095 72.596c9.997-9.997 26.207-9.997 36.204 0l36.203 36.204c9.997 9.997 9.997 26.206 0 36.204l-294.4 294.401c-9.998 9.997-26.207 9.997-36.204-.001z\"><\/path><\/svg>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Optimiser la qualit\u00e9 de vie des enfants, des adolescents et des adultes et pr\u00e9server leur bien-\u00eatre.<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-check\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M173.898 439.404l-166.4-166.4c-9.997-9.997-9.997-26.206 0-36.204l36.203-36.204c9.997-9.998 26.207-9.998 36.204 0L192 312.69 432.095 72.596c9.997-9.997 26.207-9.997 36.204 0l36.203 36.204c9.997 9.997 9.997 26.206 0 36.204l-294.4 294.401c-9.998 9.997-26.207 9.997-36.204-.001z\"><\/path><\/svg>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Collaborer avec les gouvernements, les organismes politiques, le monde (para)m\u00e9dical, les centres d\u2019expertise, les soci\u00e9t\u00e9s pharmaceutiques et les organisations europ\u00e9ennes.<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-check\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M173.898 439.404l-166.4-166.4c-9.997-9.997-9.997-26.206 0-36.204l36.203-36.204c9.997-9.998 26.207-9.998 36.204 0L192 312.69 432.095 72.596c9.997-9.997 26.207-9.997 36.204 0l36.203 36.204c9.997 9.997 9.997 26.206 0 36.204l-294.4 294.401c-9.998 9.997-26.207 9.997-36.204-.001z\"><\/path><\/svg>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Gagner en reconnaissance dans le monde politique et m\u00e9dical.<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-113c8bf elementor-widget elementor-widget-text-editor\" data-id=\"113c8bf\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Tant en Belgique qu&rsquo;au niveau europ\u00e9en, l&rsquo;asbl BOKS a contribu\u00e9 \u00e0 lib\u00e9rer davantage de ressources pour la recherche sur les maladies m\u00e9taboliques.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-62744bf e-con-full e-flex e-con e-child\" data-id=\"62744bf\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e744d33 elementor-position-inline-start elementor-view-default elementor-mobile-position-block-start elementor-widget elementor-widget-icon-box\" data-id=\"e744d33\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-box-wrapper\">\n\n\t\t\t\t\t\t<div class=\"elementor-icon-box-icon\">\n\t\t\t\t<span  class=\"elementor-icon\">\n\t\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" width=\"60\" height=\"60\" viewBox=\"0 0 60 60\"><defs><clipPath id=\"clip-path\"><rect id=\"Rectangle_16\" data-name=\"Rectangle 16\" width=\"48.759\" height=\"48.022\" fill=\"#ffb348\"><\/rect><\/clipPath><\/defs><g id=\"Group_103\" data-name=\"Group 103\" transform=\"translate(-889 -1357)\"><g id=\"Group_34\" data-name=\"Group 34\" transform=\"translate(12 -19)\"><circle id=\"Ellipse_2\" data-name=\"Ellipse 2\" cx=\"30\" cy=\"30\" r=\"30\" transform=\"translate(877 1376)\" fill=\"#233a64\"><\/circle><g id=\"Group_9\" data-name=\"Group 9\" transform=\"translate(882.79 1382.781)\"><g id=\"Group_8\" data-name=\"Group 8\" clip-path=\"url(#clip-path)\"><path id=\"Path_28\" data-name=\"Path 28\" d=\"M48.448,27.611c-.615-.751-3.184-4.78-3.857-5.059.032-.284-11.179-3.81-11.56-4,4.39-4.714,5.473-8.48,5.43-11.1-.333-8.111-9.24-9.794-14.08-4.116-4.839-5.678-13.747-4-14.081,4.117-.043,2.619,1.041,6.384,5.431,11.1L5.008,22.129a3.279,3.279,0,0,0-1.655,1.216L.316,27.608a1.651,1.651,0,0,0,.762,2.519l2.593.972v8.949A1.661,1.661,0,0,0,4.8,41.625L23.33,47.848a3.255,3.255,0,0,0,2.1,0l18.529-6.223a1.661,1.661,0,0,0,1.131-1.577V31.1l2.592-.971a1.662,1.662,0,0,0,.767-2.517M24.38,28.925,7.123,23.171l9.9-3.3A56.911,56.911,0,0,0,23.9,25.5a.828.828,0,0,0,.956,0,56.909,56.909,0,0,0,6.883-5.633l9.9,3.3ZM14.4,2.58c3.23-2.013,6.893-.644,9.315,2.571a.859.859,0,0,0,1.335,0c2.5-3.4,6.418-4.481,9.314-2.571,5.649,4.769,1.411,13.066-9.981,21.231C12.995,15.655,8.747,7.348,14.4,2.58M4.7,24.312a1.641,1.641,0,0,1,.137-.158l18.285,6.1-3.229,5.158L1.662,28.573Zm.63,15.736V31.72l13.979,5.24a1.658,1.658,0,0,0,1.989-.667l2.255-3.607V46.175Zm38.1.007-18.222,6.12V32.686l2.255,3.607a1.656,1.656,0,0,0,1.986.668L43.432,31.72Zm-14.562-4.64L25.64,30.252l18.286-6.1a1.7,1.7,0,0,1,.132.154L47.1,28.575Z\" transform=\"translate(0 0)\" fill=\"#ffb348\"><\/path><\/g><\/g><\/g><\/g><\/svg>\t\t\t\t<\/span>\n\t\t\t<\/div>\n\t\t\t\n\t\t\t\t\t\t<div class=\"elementor-icon-box-content\">\n\n\t\t\t\t\t\t\t\t\t<h3 class=\"elementor-icon-box-title\">\n\t\t\t\t\t\t<span  >\n\t\t\t\t\t\t\t2. Sensibiliser et informer\t\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/h3>\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7c5407f elementor-widget elementor-widget-text-editor\" data-id=\"7c5407f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>En tant qu&rsquo;organisation de patients, nous souhaitons informer les patients, leurs familles et leur environnement, ainsi que le grand public sur tout ce qui concerne les maladies m\u00e9taboliques. Nous essayons d\u2019y parvenir en fournissant des informations de mani\u00e8re accessible via notre portail d\u2019information. Notre objectif est avant tout d\u2019aider les patients et leurs familles \u00e0 mieux comprendre leur maladie, et de les informer sur les traitements en d\u00e9veloppement, les essais cliniques sur le point de d\u00e9marrer ou en cours,\u2026  <\/p><p>De plus, nous organisons \u00e9galement chaque ann\u00e9e une journ\u00e9e d&rsquo;information BOKS, o\u00f9 nous discutons d&rsquo;une grande vari\u00e9t\u00e9 de sujets pertinents pour nos membres.<\/p><p>Nous informons \u00e9galement r\u00e9guli\u00e8rement nos membres via nos infoBOKS. Dans ce magazine, nous discutons r\u00e9guli\u00e8rement de sujets qui peuvent \u00eatre utiles et int\u00e9ressants pour nos membres. <\/p><p>Afin de sensibiliser le grand public aux maladies m\u00e9taboliques, nous publions des vid\u00e9os et des t\u00e9moignages via nos r\u00e9seaux sociaux. Plus les gens sont conscients des probl\u00e8mes li\u00e9s aux maladies m\u00e9taboliques, mieux nous pouvons trouver du soutien pour orienter certains changements au niveau politique. <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-532720d e-con-full e-flex e-con e-child\" data-id=\"532720d\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-97bc675 elementor-position-inline-start elementor-view-default elementor-mobile-position-block-start elementor-widget elementor-widget-icon-box\" data-id=\"97bc675\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-box-wrapper\">\n\n\t\t\t\t\t\t<div class=\"elementor-icon-box-icon\">\n\t\t\t\t<span  class=\"elementor-icon\">\n\t\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" width=\"60\" height=\"60\" viewBox=\"0 0 60 60\"><defs><clipPath id=\"clip-path\"><rect id=\"Rectangle_17\" data-name=\"Rectangle 17\" width=\"39.448\" height=\"42.256\" fill=\"#ffb348\"><\/rect><\/clipPath><\/defs><g id=\"Group_104\" data-name=\"Group 104\" transform=\"translate(-179 -2067)\"><g id=\"Group_35\" data-name=\"Group 35\" transform=\"translate(78 90)\"><circle id=\"Ellipse_3\" data-name=\"Ellipse 3\" cx=\"30\" cy=\"30\" r=\"30\" transform=\"translate(101 1977)\" fill=\"#233a64\"><\/circle><g id=\"Group_11\" data-name=\"Group 11\" transform=\"translate(111.276 1985.872)\"><g id=\"Group_10\" data-name=\"Group 10\" clip-path=\"url(#clip-path)\"><path id=\"Path_29\" data-name=\"Path 29\" d=\"M33.813,268H28.882a5.6,5.6,0,0,0-5.262,3.628,5.634,5.634,0,0,0-1.078-.106c-.8.037-6.047-.1-6.713.106A5.6,5.6,0,0,0,10.566,268H5.635A5.642,5.642,0,0,0,0,273.631v7.749a4.231,4.231,0,0,0,4.227,4.227h7.749c6.205-.007,17.105.005,23.246,0a4.231,4.231,0,0,0,4.227-4.227v-7.749A5.642,5.642,0,0,0,33.813,268m-11.271,4.931a4.231,4.231,0,0,1,4.227,4.227v2.818h-.7a2.826,2.826,0,0,0-2.426,4.227H15.81a2.826,2.826,0,0,0-2.426-4.227h-.7v-2.817a4.231,4.231,0,0,1,4.227-4.227ZM11.975,284.2H4.227a2.821,2.821,0,0,1-2.818-2.818v-7.749A4.231,4.231,0,0,1,5.635,269.4h4.931a4.192,4.192,0,0,1,3.92,2.667,5.637,5.637,0,0,0-3.216,5.082v2.817l-4.4,0-1.261-4.417a.7.7,0,0,0-1.355.387l1.264,4.427a1.426,1.426,0,0,0,1.35,1.015h6.516a1.409,1.409,0,0,1,0,2.818H11.975m26.064-2.818a2.821,2.821,0,0,1-2.818,2.818c-1,0-8.369,0-9.158,0a1.409,1.409,0,0,1,0-2.818H32.58a1.43,1.43,0,0,0,1.354-1.025l1.261-4.417a.7.7,0,0,0-1.355-.387l-1.26,4.42h-4.4v-2.818a5.637,5.637,0,0,0-3.216-5.082,4.192,4.192,0,0,1,3.92-2.667h4.931a4.231,4.231,0,0,1,4.227,4.227Z\" transform=\"translate(0 -243.352)\" fill=\"#ffb348\"><\/path><path id=\"Path_30\" data-name=\"Path 30\" d=\"M172.405,179.639a3.879,3.879,0,0,0-3.874,3.874v1.761a4.227,4.227,0,0,0,8.453,0v-1.761a3.982,3.982,0,0,0-4.579-3.874m3.17,3.874v1.761a2.818,2.818,0,0,1-5.635,0v-1.761a2.469,2.469,0,0,1,2.466-2.466h.7a2.469,2.469,0,0,1,2.466,2.466\" transform=\"translate(-153.034 -163.096)\" fill=\"#ffb348\"><\/path><path id=\"Path_31\" data-name=\"Path 31\" d=\"M50.19,147.369a4.231,4.231,0,0,0,4.227-4.227v-1.761a3.982,3.982,0,0,0-4.579-3.874,3.879,3.879,0,0,0-3.874,3.874v1.761a4.231,4.231,0,0,0,4.227,4.227m-2.818-5.988a2.469,2.469,0,0,1,2.466-2.466h.7a2.469,2.469,0,0,1,2.466,2.466v1.761a2.818,2.818,0,0,1-5.635,0Z\" transform=\"translate(-41.736 -124.838)\" fill=\"#ffb348\"><\/path><path id=\"Path_32\" data-name=\"Path 32\" d=\"M291.1,141.381v1.761a4.227,4.227,0,0,0,8.453,0v-1.761a3.982,3.982,0,0,0-4.579-3.874,3.879,3.879,0,0,0-3.874,3.874m1.409,0a2.469,2.469,0,0,1,2.466-2.466h.7a2.469,2.469,0,0,1,2.465,2.466v1.761a2.818,2.818,0,0,1-5.635,0Z\" transform=\"translate(-264.331 -124.838)\" fill=\"#ffb348\"><\/path><path id=\"Path_33\" data-name=\"Path 33\" d=\"M130.628,14.661a.7.7,0,0,0,.787,0c6.724-4.531,8.094-8.082,8.059-10.262-.224-4.738-5.513-5.7-8.452-2.628-2.94-3.077-8.229-2.109-8.452,2.629-.035,2.18,1.335,5.73,8.059,10.262M125.293,1.892c1.781-1.058,3.817-.334,5.17,1.378a.73.73,0,0,0,1.116,0c1.393-1.805,3.569-2.384,5.17-1.378,2.944,2.37,1.018,6.634-5.728,11.332-6.743-4.7-8.673-8.962-5.728-11.332\" transform=\"translate(-111.297 0)\" fill=\"#ffb348\"><\/path><\/g><\/g><\/g><\/g><\/svg>\t\t\t\t<\/span>\n\t\t\t<\/div>\n\t\t\t\n\t\t\t\t\t\t<div class=\"elementor-icon-box-content\">\n\n\t\t\t\t\t\t\t\t\t<h3 class=\"elementor-icon-box-title\">\n\t\t\t\t\t\t<span  >\n\t\t\t\t\t\t\t3. Assistance\t\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/h3>\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9acb9ab elementor-widget elementor-widget-text-editor\" data-id=\"9acb9ab\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Imm\u00e9diatement apr\u00e8s le diagnostic, les personnes ont besoin d\u2019un abri. Ces personnes nouvellement diagnostiqu\u00e9es et\/ou leurs familles ont besoin d\u2019une oreille attentive. Mais m\u00eame plus tard, ils ont parfois besoin de soins tr\u00e8s sp\u00e9cifiques et individuels. Les gens ont des questions tr\u00e8s sp\u00e9cifiques et personnelles, ont besoin d\u2019un soutien suppl\u00e9mentaire dans le deuil apr\u00e8s un diagnostic, un d\u00e9c\u00e8s, etc.   <\/p><p>BOKS peut fournir une assistance individuelle \u00e0 toutes les phases du processus de la maladie.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-f4ace44 e-con-full e-flex e-con e-child\" data-id=\"f4ace44\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e5e007e elementor-position-inline-start elementor-view-default elementor-mobile-position-block-start elementor-widget elementor-widget-icon-box\" data-id=\"e5e007e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-box-wrapper\">\n\n\t\t\t\t\t\t<div class=\"elementor-icon-box-icon\">\n\t\t\t\t<span  class=\"elementor-icon\">\n\t\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" width=\"60\" height=\"60\" viewBox=\"0 0 60 60\"><defs><clipPath id=\"clip-path\"><rect id=\"Rectangle_18\" data-name=\"Rectangle 18\" width=\"47.677\" height=\"46.507\" fill=\"#ffb348\"><\/rect><\/clipPath><\/defs><g id=\"Group_36\" data-name=\"Group 36\" transform=\"translate(-1075 -2170)\"><circle id=\"Ellipse_4\" data-name=\"Ellipse 4\" cx=\"30\" cy=\"30\" r=\"30\" transform=\"translate(1075 2170)\" fill=\"#233a64\"><\/circle><g id=\"Group_13\" data-name=\"Group 13\" transform=\"translate(1081.162 2177.113)\"><g id=\"Group_12\" data-name=\"Group 12\" clip-path=\"url(#clip-path)\"><path id=\"Path_34\" data-name=\"Path 34\" d=\"M47.358,9.165,35.3.157a.8.8,0,0,0-1.11.158L28.641,7.674a.533.533,0,0,1-.3.2l-3.73.974a3.663,3.663,0,0,0-2.384,1.973L20.992,13.4l-3.551-.252a4.162,4.162,0,0,0-3,.989L8.732,19.01A5.3,5.3,0,0,0,6.9,22.382l-.748,5.512a2.247,2.247,0,0,1-.577,1.229L.217,34.781a.794.794,0,0,0,.015,1.107L10.607,46.276a.8.8,0,0,0,1.135-.01l5.715-5.939L17.6,41a2.6,2.6,0,0,0,3.064,1.983l2.285-.49c.015,0,.026-.013.04-.017a2.412,2.412,0,0,0,2.322.9c.961-.144,2.2-.3,2.711-1.243a3.928,3.928,0,0,0,2.939.121,2.355,2.355,0,0,0,1.947-2.615l1.63-.419a2.913,2.913,0,0,0,2.132-2.287l.263-1.4c.208.022,2.146.279,2.3.264a2.424,2.424,0,0,0,2.4-2.125,5.381,5.381,0,0,0,.021-2.43,2.42,2.42,0,0,0,1.571-1.974,4.921,4.921,0,0,0-.029-2.558,2.392,2.392,0,0,0,1.352-1.879l.16-1.305a2.421,2.421,0,0,0-1.675-2.6,6.728,6.728,0,0,0,.423-2.1,2.407,2.407,0,0,0-.6-1.892l4.678-6.675a.8.8,0,0,0-.175-1.093m-36.2,35.414L1.9,35.312l4.828-5.1a3.833,3.833,0,0,0,.991-2.1l.748-5.518a3.722,3.722,0,0,1,1.292-2.369l5.7-4.869a2.616,2.616,0,0,1,1.862-.615L21.085,15a.787.787,0,0,0,.607.048l4.8.346a.378.378,0,0,1,.35.386l-.021.767a2.234,2.234,0,0,1-2,2.171l-5.73.717a1.957,1.957,0,0,0-1.519,1.111L15.7,24.469a7.638,7.638,0,0,0-.576,4.874l1.933,9.105Zm28.895-11.1a.832.832,0,0,1-.925.723l-3.3-.4a.679.679,0,0,1-.591-.757l.2-1.606a.681.681,0,0,1,.756-.591l3.3.405a.833.833,0,0,1,.722.925l-.16,1.305m1.1-15.772a.831.831,0,0,1,.723.925l-.154,1.254a.835.835,0,0,1-.925.723l-3.3-.4a.679.679,0,0,1-.591-.756l.191-1.556a.682.682,0,0,1,.756-.591l3.3.4m.491,11.368a.833.833,0,0,1-.925.723l-4.332-.532a.681.681,0,0,1-.591-.756l.2-1.606a.68.68,0,0,1,.756-.591l4.331.532a.831.831,0,0,1,.723.925Zm1.323-4.437a.835.835,0,0,1-.925.723l-5.1-.626a.681.681,0,0,1-.591-.757l.2-1.606a.682.682,0,0,1,.672-.6.674.674,0,0,1,.084.005l3.3.4,1.8.221a.833.833,0,0,1,.723.925l-.16,1.305m-1.508-8.483c-.039-.007-.074-.021-.113-.026l-3.3-.4A2.279,2.279,0,0,0,35.524,17.7c-.091.9-.459,2.316.183,3.085-.828.619-.793,2.085-.93,3a2.246,2.246,0,0,0,.375,1.533c-.817.6-.8,2.086-.931,3a2.244,2.244,0,0,0,.375,1.532c-.817.6-.8,2.086-.931,3a2.264,2.264,0,0,0,1.691,2.463l-.25,1.331a1.319,1.319,0,0,1-.964,1.038l-1.523.391-1.171-6.091a.8.8,0,0,0-1.56.3L31.332,39.8a.773.773,0,0,1-.647.89l-1.149.2a1.108,1.108,0,0,1-1.223-.719l-1.4-7.257a.795.795,0,1,0-1.56.3l1.391,7.231a.829.829,0,0,1-.593,1.17l-1.12.2a.8.8,0,0,1-.941-.628l-1.276-7.273a.8.8,0,0,0-1.565.275l1.192,6.79-2.113.453a1,1,0,0,1-1.18-.761l-.443-2.108c0-.016-.009-.038-.016-.06L16.679,29.01a6.041,6.041,0,0,1,.457-3.856l1.879-3.928a.374.374,0,0,1,.287-.213l5.714-.715a3.857,3.857,0,0,0,3.4-3.7l.021-.764a1.957,1.957,0,0,0-1.826-2.018l-3.911-.281.97-2.029a2.078,2.078,0,0,1,1.353-1.118l3.715-.97a2.127,2.127,0,0,0,1.17-.772L34.984,1.9,45.789,9.977Z\" transform=\"translate(0 0.001)\" fill=\"#ffb348\"><\/path><\/g><\/g><\/g><\/svg>\t\t\t\t<\/span>\n\t\t\t<\/div>\n\t\t\t\n\t\t\t\t\t\t<div class=\"elementor-icon-box-content\">\n\n\t\t\t\t\t\t\t\t\t<h3 class=\"elementor-icon-box-title\">\n\t\t\t\t\t\t<span  >\n\t\t\t\t\t\t\t4. Activit\u00e9s des membres\t\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/h3>\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a5a16b6 elementor-widget elementor-widget-text-editor\" data-id=\"a5a16b6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>En tant qu&rsquo;organisation de patients, l&rsquo;association \u00e0 but non lucratif BOKS rassemble ses membres lors de journ\u00e9es et de week-ends familiaux sp\u00e9ciaux. Ce contact avec d\u2019autres personnes souffrantes a un effet curatif. Les membres discutent entre eux et partagent leurs exp\u00e9riences. Les parents ou les personnes atteintes d\u2019un trouble m\u00e9tabolique se reconnaissent dans les histoires d\u2019autres parents, personnes atteintes d\u2019un trouble m\u00e9tabolique et qui comprennent ce qu\u2019ils vivent.   <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Devenir b\u00e9n\u00e9vole Collecte de fonds Tout sur notre organisation BOKS asbl = Organisation belge pour les enfants et les adultes atteints d&rsquo;une maladie m\u00e9tabolique association sans but lucratif L&rsquo;association \u00e0 but non lucratif BOKS est une organisation fa\u00eeti\u00e8re pour toutes les maladies m\u00e9taboliques qui sont individuellement trop rares pour recevoir le soutien et l&rsquo;int\u00e9r\u00eat du [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-2148","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/boks.be\/fr\/wp-json\/wp\/v2\/pages\/2148","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/boks.be\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/boks.be\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/boks.be\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/boks.be\/fr\/wp-json\/wp\/v2\/comments?post=2148"}],"version-history":[{"count":6,"href":"https:\/\/boks.be\/fr\/wp-json\/wp\/v2\/pages\/2148\/revisions"}],"predecessor-version":[{"id":2424,"href":"https:\/\/boks.be\/fr\/wp-json\/wp\/v2\/pages\/2148\/revisions\/2424"}],"wp:attachment":[{"href":"https:\/\/boks.be\/fr\/wp-json\/wp\/v2\/media?parent=2148"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}