Table of Contents
- MetabERN Calendar (meetings and important deadlines)
- Your attention is needed: MetabERN Continuous Monitoring and Quality Improvement System (CMQS)
- Second call for ERN Research Mobility Fellowship to come up soon!
- Message from the CPMS-Helpdesk
- MetabERN lnterim Report
- ERN CPMS/ECP Status Report July 2020
- MetabERN Status Report July 2020
- Commission publishes evaluation of the legislation on medicines for children and rare diseases
- Proposal for a transversal cross-ERNs Study Group on Pregnancy and Family planning in Rare, low prevalence and complex diseases
- ERN Study Group on Paediatric Anaesthesia for Rare and Complex Diseases
- RD patient pathways – what do they look like in your country ?
- Surveys to be completed
- Reminder Your input is needed: Webinars for the Education programme (DCTEP)
- MetabERN and ERNDIM EQA Schemes
- C4C Collaborations: FDA Consultation Response & The Rare Disease Consortium Guidebook- FOR INFORMATION
- Survey about Phenylketonuria (PKU) patients missed for diagnosis and/or missed for follow-up.
- Webinar “Treatment with empagliflozin in patients with glycogen storage disease type Ib”
- Acknowledgements policy